case: (Default)
Case ([personal profile] case) wrote in [community profile] fandomsecrets2015-02-05 07:19 pm

[ SECRET POST #2955 ]


⌈ Secret Post #2955 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.

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Notes:

Secrets Left to Post: 01 pages, 014 secrets from Secret Submission Post #422.
Secrets Not Posted: [ 0 - broken links ], [ 0 - not!secrets ], [ 0 - not!fandom ], [ 0 - too big ], [ 0 - repeat ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.

(Anonymous) 2015-02-06 01:11 am (UTC)(link)
AYRT

Postictal state is pretty fucking terrifying. And it can be painful, depending on what kinds of seizures people have. I get massive headaches, my entire right side feels like it's been hit with sticks, and I tend to be more confused than Will seemed to be. Also talking is almost impossible. And I have no idea where I am, or what is going on.

Visibility for seizure disorders, especially in terms of accuracy, and what you can do for people afterwards, was a pretty huge thing for me. Mostly they're scary to watch, so the media either ignores them or uses them for self-serving purposes, but they tend to forget that the seizure is like 1000% scarier for the person having it.

To have a seizure appear in the middle of a non-cable nighttime TV show, and have the aftercare shown as something not scary, but something gentle, was a really big thing for me.

And thank you for going out of your way to educate yourself! I really appreciate it, because 99% of the time, people have no idea what's going on. And other people panicking is actually kind of a freak out for me, because depending on how conscious I am, I end up apologizing for scaring them, adding to the shame of having a health episode in public, or getting scared myself.
sarillia: (Default)

[personal profile] sarillia 2015-02-06 01:40 am (UTC)(link)
I know how that is, ending up feeling like you have to apologize for bothering people after a health crisis. I'm sorry you have to deal with that.
lb_lee: A happy little brain with a bandage on it, enclosed within a circle with the words LB Lee. (Default)

[personal profile] lb_lee 2015-02-06 08:28 pm (UTC)(link)
I actually started reading about epilepsy for a writing project, and ended up doing a little learning about how to deal if someone is having a seizure. I still don't know how GOOD at it I'd be, but at least I wouldn't get the person hurt.

(This was also partly inspired that I was once on a bus where someone DID have a seizure, and although it , I was kinda alarmed that I had no idea what to do. Nobody on the bus seemed to have a clue either, but one guy did gently touch the dude's arm afterward and be like, you okay? Do you want a doctor? So at least we weren't dicks, but still. Good enough reason for me to do some learning.)

--Rogan