case: (Default)
Case ([personal profile] case) wrote in [community profile] fandomsecrets2016-03-04 07:05 pm

[ SECRET POST #3348 ]


⌈ Secret Post #3348 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.

01.
[Dr. Who]


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04.
[Babylon 5, Susan/Talia]


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05.


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06.


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07.
[Neverending Story]


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09.


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10.


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11.
[Maximilian Dood and Benny]


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12.


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13.


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14. [SPOILERS for Avatar: the Last Airbender/Legend of Korra]






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15. [SPOILERS for Tsubasa Reservoir Chronicle]





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16. [SPOILERS for The 100]





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17. [SPOILERS for Legacy of the Force]





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18. [SPOILERS for Halo 5]

























Notes:

Secrets Left to Post: 00 pages, 000 secrets from Secret Submission Post #478.
Secrets Not Posted: [ 0 - broken links ], [ 1 2 - not!secrets ], [ 0 - not!fandom ], [ 0 - too big ], [ 0 - repeat ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.
kallanda_lee: (Default)

Re: "Spoonies"

[personal profile] kallanda_lee 2016-03-05 10:37 am (UTC)(link)
I'm considering genetic testing, as the side-effects are getting progressively more noticeable over time, and I never got an official diagnosis. It just costs a bit of money, but it might be worth it. Problem is I'm overweight and that does not help, especially not with the ankles in my case.
belladonna_took: richard armitage (Default)

Re: "Spoonies"

[personal profile] belladonna_took 2016-03-05 04:37 pm (UTC)(link)
I'm seeing a clinical geneticist from one of the big city hospitals who comes down to lecture at the uni and consult on complex cases at our hospital (I guess I'm complex. Yay?). I'll let you know more about the process if you're interested? At the moment his intern is putting in requests for info from all my doctors and specialists and they want a family history before the appointment.

All the joints in my legs are bad and I've never been overweight, so if they try to tell you it's only an issue of weight, they're misinformed. Hypermobility puts you at risk of developing osteoarthritis, too.

It's worth sort of going through the list of conditions that can be associated with hypermobility and seeing if any of them might be worth being tested for on their own, I think. I wish I knew earlier about my heart and what was causing all the weirdness. There's also a connection between EDS and anxiety because it causes some people to overproduce adrenaline. I finally know why I get really restless and jittery for no reason.

Okay. Geez. I can ramble.
If you ever want to talk about anything related to this you can pm me. :)
kallanda_lee: (Default)

Re: "Spoonies"

[personal profile] kallanda_lee 2016-03-06 12:08 am (UTC)(link)
I am interested if you do not mind! (And I have anxiety)

my heart is actually why I'm considering testing. I did not have trouble so far - but it's the one thing that really worried me as a possibility.