[ SECRET POST #4790 ]

[case]

⌈ Secret Post #4790 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.

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Notes:

Secrets Left to Post: 01 pages, 07 secrets from Secret Submission Post #686.
Secrets Not Posted: [ 0 - broken links ], [ 0 - not!secrets ], [ 0 - not!fandom ], [ 0 - too big ], [ 0 - repeat ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.

Comments

[erinptah]

I hate how some people are jumping to "she's faking everything!" from "a person says they've had more than one unrelated health issue, all while I, a stranger on the internet, haven't personally witnessed them."

[(Anonymous)]

Or worse: "I'm pointing out all the inconsistencies but only to Patrons of my Patreon!"

[(Anonymous)]

She has Ehler-Danlos Syndrome, which is a connective tissue disorder that leads to all kinds of other fun stuff, from dislocations to broken bones to allergies to chronic fatigue to heart problems. It's really common for people with EDS to have a bunch of disparate diagnoses that eventually come together and make sense. This is also common with immune and endocrine issues, so it makes me cranky when people are all "No way do you have that many things wrong with you!" when it's a common experience before you find the underlying cause.

[(Anonymous)]

You are singing the song of my people. lol.

Too many people think that it's a given that everyone would be diagnosed early as a child if they had that many medical issues. It's not an episode of House. Mostly they say things like "wait and see, maybe she'll grow out of it, etc." and people don't get diagnosed until they can advocate for themselves and tell doctors to cut the bullshit out.

One of the few joys in my life is seeing people freak out when they see my medical history. It would be quicker to tell people what's not wrong with me at this point.

[(Anonymous)]

NAYRT but... are you me?

[(Anonymous)]

Probably not but sometimes it's hard to remember which comments were me because brain fog.

There are too many of us. It's nice to have people who understand, but it's sad too.

[(Anonymous)]

da. I'm lucky enough not to have anything like this myself, but I know a couple of people with various constellations of issues including auto-immune stuff, and I just wanted to say that a) I'm so sorry you have to put up with all the physical crap and b) I'm so sorry you have to put up with all the other crap from people who don't believe you or just don't get it.

[(Anonymous)]

So true. A friend of mine wasn’t diagnosed with EDS until she was 45 after years of habing her symptoms ignored by doctors or misdiagnosed.

[erinptah]

Yes, absolutely, this too.