[ SECRET POST #5099 ]

[case]

⌈ Secret Post #5099 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.


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Notes:

Secrets Left to Post: 02 pages, 31 secrets from Secret Submission Post #730.
Secrets Not Posted: [ 0 - broken links ], [ 0 - not!secrets ], [ 0 - not!fandom ], [ 0 - too big ], [ 0 - repeat ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.

Comments

Re: What's one thing you miss?

[(Anonymous)]

NAYRT--i'm sorry, that's awful.

We can't win. The number of times I've been told "lose weight and then we'll order tests" and/or "it's all in your head" outnumber the times when doctors have tested or treated for the actual issue by a really depressing margin.

I wonder if framing it as "I'd like to gain weight, but I'm always nauseous" would help?

Re: What's one thing you miss?

[(Anonymous)]

I did that as an adult, after not knowing how to describe it as a kid... It's been going on for 30+ years and no matter what doctor I see or how I frame it, the furthest from that eventual "diagnosis" I have gotten is "I think you're just afraid of getting fat and having anxiety over it, I'll prescribe Valium." Which did nothing except make me so depressed I couldn't get out of bed all day. :P

I'm pretty sure after reading a TON of stuff on the internet from people in other countries that it's a severe case of SIBO that has just gone untreated so long that it's destroying more and more of my GI tract, but I have yet to find a doctor in my state (let alone covered by insurance I can afford) who doesn't answer that suggestion with "Well I've never heard of SIBO so you must be making that up too."

At least trying to do something about it on my own by going low FODMAP somehow cleared up the weeks-long severe migraines, panic attacks that would wake me up in the middle of the night hyperventilating, and an assortment of other neurological oddities, so researching on my own wasn't a total waste, even if it didn't make the most severe GI issues go away.