[ SECRET POST #5654 ]

[case]

⌈ Secret Post #5654 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.


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Notes:

Secrets Left to Post: 01 pages, 16 secrets from Secret Submission Post #809.
Secrets Not Posted: [ 0 - broken links ], [ 0 - not!secrets ], [ 0 - not!fandom ], [ 0 - too big ], [ 0 - repeat ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.

Comments

Re: Um... venting?...

[tabaqui]

I think you explained very well!
Holy crap, Anon - all of that sounds fucking horrifying and frustrating and exhausting to live through, and I'm SO glad you finally got an answer and a diagnosis. I know I felt that way when I had to have emergency surgery and they were like 'well, you have Crohn's, so that is why.....' Because up until that point, I think a lot of people who knew me thought I was making shit up just to get out of things or whatever.

So - YAY! I hope they have some kind of way to deal with this? A medication or something that will maybe alleviate some of the symptoms? Or at least make them more bearable.

I think if you really wanted to tell your friends, go one at time, one on one, mention something that's happened in the past (hey, remember that time that I ....?) and then explain your doctor found this issue (lesion? tumor? weird brain wiring?) that basically can cause a huge laundry list of issues, and that's what you've been struggling with, undiagnosed, for years, and now you feel really happy and relieved that there's a concrete thing you can deal with instead of random events happening to your brain/body that seem to have no trigger and no cause.

Or just copy/paste most of your post into an email or FB or something and share it - if I were a friend, I'd be thrilled to know you finally have some answers.

Good luck! I'm so happy that you have this information now.

Re: Um... venting?...

[(Anonymous)]

Oh my, thanks a lot! Yeah, actually ... one of the best things has been reading stories like this. Because more than once in my life I was ms. "what's she sick with again?" and for a while I couldn't even meet new people because I was confused about life as a whole so... hearing stories from others that went through difficult things because of health conditions and managed to feel better and recover or get treatment just makes me feel all giddy and hopeful, so thanks, really, and I hope you are doing better now. ♥

Yeah, they're not *sure* but I have been trying some meds (thanks for reminding me lol ... I hate the side-effects of the one I am taking now so maybe I forget it too often ... let's take it.)

The hardest part has been that nobody knows for sure, and I have yet to find a doctor I can fully rely on (hopefully in a few days!!). This thing has probably affected me in the most seemingly random ways. For one, I broke up with my first friend ever because I dropped and ruined 5 of her belongings in one day, and now I know those things COULD be related. Maybe they know it even better than me, so I hope they will believe it.

Thanks again, and best of luck with your battles as well!

Re: Um... venting?...

[tabaqui]

Good luck with finding the right doc - i know that's not the easiest thing, *as well as* getting meds stabilized.

But *knowing* what's going on is, for me, the biggest part and the part that really helps. When I was just randomly sick and in pain for fucking *years*, with no insurance so no way to really get in there and get any kind of care, it was so fucking frustrating. But once I finally knew, I could research and read and figure out wtf was going on and how to deal with stuff and feel better.

I think i'm mostly okay, now, but it does flare up from time to time, and I do still have to be careful about what I eat, though not as super-careful as I was for years, so - that's something.
Thanks!
*hugs*

Re: Um... venting?...

[(Anonymous)]

Yeah, exactly. It's true, it IS a lot better than just struggling and screaming and waving your arms like "I SWEAR there is SOMETHING going on". Thank God for the Internet and free knowledge and support communities regardless of what doctors may say lol.

That's great! *hugs* to you too :)

Re: Um... venting?...

[tabaqui]

The one good thing that came out of it (other than the surgery/diagnosis) was about 5 years before that, they thought maybe it was endometriosis or something, and when i coughed up the 4000 dollar down payment (thank you, mom and dad), i got a hysterectomy, which was fucking awesome.

I fell into a little sweet spot of having insurance, having had a kid, being 'old enough' (rolls eyes), and having a (sketchily) documented history of issues.

Re: Um... venting?...

[(Anonymous)]

Yeah, that's... lucky, in a roundabout way. Wish I could get one myself (because I also have a condition that puts me at high risk of having a miscarriage if I ever get pregnant because, yeah, no such thing as "lightning does not strike twice in the same place" as I learned recently... and of course that has always been *another* struggle.) so I get what you mean, totally. Lol, sometimes medical ignorance works in our favor?!?