[ SECRET POST #2080 ]

[case]

⌈ Secret Post #2080 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.

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Notes:

Secrets Left to Post: 00 pages, 034 secrets from Secret Submission Post #297.
Secrets Not Posted: [ 0 - broken links ], [ 1 2 3 4 - not!secrets ], [ 0 - not!fandom ], [ 1 2 - too big ], [ 0 - repeat ], [ 1 2 - posted twice ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.

Comments

[partialsatyr]

getting diagnosed is always kind of weird. on one hand, it's kind of a relief if you've been suffering for a long time and you just now have a name to give to all your symptoms. on the other hand, a lot of the time you're sitting there thinking "so this is what the rest of my life's gonna be like, huh?"
dont be surprised if you start crashing a little bit. there's something depressingly final about getting an absolute diagnosis.

it's safe to say, though, that all my diagnoses were pretty expected. at least one of them was an "oh thank god it's not cancer" because the symptoms for the disease very closely mimic the symptoms for a certain kind of cancer (that i was convinced i had for a few months)

in the end though, it's a slow dealing-with process. for like almost a year after i was diagnosed, i couldnt stop talking about it. i'm sure my friends got absolutely sick to death hearing about it, but talking it out was how i coped. eventually you come to terms with what you have and you just start surviving.

[(Anonymous)]

getting diagnosed is always kind of weird. on one hand, it's kind of a relief if you've been suffering for a long time and you just now have a name to give to all your symptoms. on the other hand, a lot of the time you're sitting there thinking "so this is what the rest of my life's gonna be like, huh?"

So much, this! I spent almost five years in constant pain, some days to the point where I couldn't walk, in and out of ERs, seeing specialists, getting an MRI, x-rays etc, being asked by ER docs "Are you sure you didn't just pull a muscle?" which is ridiculous since, they ask you prior to that HOW LONG you've been experiencing these symptoms, and I'm pretty sure no pulled muscled lasts four years... ¬.¬

So when I was diagnosed with fibromyalgia, it was kind of like a mixture of, "Oh so I'm not crazy..." and "Ugh, I basically have a condition that my best case scenario will always be "managing symptoms" and nothing more."

[partialsatyr]

ugh this was so much like my experience. there was such a long period of time where none of my symptoms had any kind of "proof" that i was actually sick and not just trying to shirk my responsibilities. i ended up dropping all my classes and spending my entire day lying on the couch, sleeping upwards of 18 hours and rarely eating. lost a lot of weight i can't afford to lose, and to top it all off, i had what i thought were chronic urinary tract infections (which i had never experienced prior to that year)
cue a long, looong drawn out process of doctors, tests, bloodwork, etc. no one seemed to particularily believe me. there was a huge back and forth between my GP and my psychiatrist. the former was convinced that all my symptoms were a result of my bipolar. my psychiatrist (who had known me for 8 years) thought that was bullshit.
long story short, i got diagnosed with two different diseases. the first one was easier- it just required omitting certain foods from my diet. inconvenient and painful, but not the end of the world. second one hit a lot harder. no cure, no clear treatment, just a whole lot of finger crossing and hoping for the best. that, and the very real possibility that i could end up on disability some time down the road. that was a huge demoralizer.

still, it's nice to have a name to put on things.

[(Anonymous)]

Ugh, there was nothing worse than being treated like an attention seeker, it was so frustrating! Yeah I ended up losing about... sixty pounds between being in so much pain that was either just sleeping or not eating, and then regulating pain meds where one of them literally made me nauseated from everything, including water, it was ridiculous.

My poor mom was freaking out, because at my lowest point before diagnosis, I actually slept for almost two days, and she was panicking because she couldn't get me to stay awake long enough to take my other meds, let alone get me to eat or drink anything. :/

The 'bonus' if you want to call it that to being diagnosed was that at least I could put it on my work's occupational health records, so I have modified duties and I don't have to work more than five consecutive days (prior to this we/I would sometimes work up to twelve days straight). This has helped a lot because it stopped putting so much stress on my body, allowing me to keep pain and fatigue mostly under control.

[biohazardgirl]

+1 On the tiny not knowing what to do with yourself when it's lifelong stuff.

"So when you say I'm going to need to be on these pills forever, how long exactly is that forever?"
"Do you feel good on them now?"
"Yeah"
"Did you feel good before?"
"I wanted to die before"
"You could feel like that again if you got off them."
"Forever sounds fantastic."

I'm glad you figured out what's wrong and that you're feeling a bit better :)