case: (Default)
Case ([personal profile] case) wrote in [community profile] fandomsecrets2013-08-04 03:31 pm

[ SECRET POST #2406 ]


⌈ Secret Post #2406 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.

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Notes:

Secrets Left to Post: 04 pages, 077 secrets from Secret Submission Post #344.
Secrets Not Posted: [ 0 - broken links ], [ 0 - not!secrets ], [ 0 - not!fandom ], [ 0 - too big ], [ 0 - repeat ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.

Re: Had a shocking moment of realization today

(Anonymous) 2013-08-04 11:03 pm (UTC)(link)
Um well, I'm autistic and basically I notice that Autism Speaks seems to act like they want to help autism but all they do is act like being autistic is a horrible thing and that the world would be better if no one was autistic (one of their board members have said they want to make autism 'a word for the history books')

Even their PSA for it was all about how hard it was to raise an autistic child. Even parents making disturbing comments about how they want to kill their child and themselves.

it does nothing but hurt autistic people to spread the belief that being autistic is a horrible thing worse than death. My parents made it very well without that kind of thinking and they continue to reinforce that no matter what I am they want me in their family.

So either AS doesn't realize they'r being hurtful or just don't care, The fact that they won't let any autistic people on their 'board' tells me they don't care. All they care about is the 'frustration' and 'issues' they cause to non autistic parents.

:/
chardmonster: (Default)

Re: Had a shocking moment of realization today

[personal profile] chardmonster 2013-08-04 11:49 pm (UTC)(link)
My parents made it very well without that kind of thinking and they continue to reinforce that no matter what I am they want me in their family.

I don't want to be an asshole, but: you're clearly functional. You're able to communicate with other adults on a message board.

Now imagine raising a kid who is unresponsive and will need lifelong care. Who may not be able to express any kind of love in return.

I'm not trying to defend Autism Speaks or anything--I've heard nothing good about them--but you have to acknowledge that Autism is a spectrum and you're on a certain end of it.

Re: Had a shocking moment of realization today

(Anonymous) 2013-08-04 11:53 pm (UTC)(link)
That's true....

I guess I shouldn't have said that.

Sorry
chardmonster: (Default)

Re: Had a shocking moment of realization today

[personal profile] chardmonster 2013-08-05 12:03 am (UTC)(link)
Nah, it's okay. What I'm saying is that the issues your parents may have faced raising you might be very different from the issues faced by the parents Autism Speaks preys on. Which isn't to say your parents aren't awesome!

You can speak for yourself. The problem is the usual victims of Autism Speaks literally can't. It's important to be really clear when you're advocating against something, especially when it has what look to be on the surface good motives.
Edited 2013-08-05 00:06 (UTC)
thene: Fang, with her back turned.  Fate is not kind to those who leap. (oerba yun fang)

Re: Had a shocking moment of realization today

[personal profile] thene 2013-08-05 12:12 am (UTC)(link)
eh, my husband's little brother has autism that makes him barely verbal but he can certainly express love. He's just much more adept with playing physical games than with talking. I do feel like a lot of internet autism activism doesn't square with that more extreme end of the spectrum, though.