case: (Default)
Case ([personal profile] case) wrote in [community profile] fandomsecrets2014-04-14 06:41 pm

[ SECRET POST #2659 ]


⌈ Secret Post #2659 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.

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Notes:

Secrets Left to Post: 03 pages, 062 secrets from Secret Submission Post #380.
Secrets Not Posted: [ 0 - broken links ], [ 0 - not!secrets ], [ 0 - not!fandom ], [ 0 - too big ], [ 0 - repeat ], [ 1 - posted twice ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.

Re: Autism Activism? I think I'm missing something, here.

(Anonymous) 2014-04-15 01:51 pm (UTC)(link)
Autism Speaks is terrible, regardless.

No one, regardless of symptoms, benefits from 'awareness' campaigns that increase stigma. No one benefits from AS's repeated refusals to speak up for autistic people and their families who face discrimination in schools and elsewhere. No one benefits from their sponsorship of the Judge Rotenberg Center, which punishes minor offenses with electric shocks and is being investigated for torture.

And honestly, no one is really benefitting from the degree to which they're focused on 'cure' (which judging on the direction research is going will probably look more like prenatal testing/prevention anyway). They talk a lot about lack of services, but only 3-4% of their budget goes to service provision. There are educational interventions and therapies and assistive technologies that already exist and that are research-proven to help- if they would just reallocate some of their funds from that area and from meaningless light-buildings-up-blue publicity stunts they could be helping so many people right now, but they seem content for that to be the responsibility of the small, local disability orgs.

Re: Autism Activism? I think I'm missing something, here.

(Anonymous) 2014-04-15 03:35 pm (UTC)(link)
Original anon- Now I think these are legitimate issues. Unfortunately, I haven't seen much criticism of these things because instead some people are just saying "Well, I'm autistic (high-functioning) and I don't need/want help!" which is ignoring people on the lower end of the spectrum.

Re: Autism Activism? I think I'm missing something, here.

(Anonymous) 2014-04-15 04:52 pm (UTC)(link)
Huh, and that's the majority of the criticism I've encountered.

I see it primarily from autistic advocates and parent advocates who are opposed to cure, sure, but most of them use (or need/want) help for themselves or their children, and they've typically been very intent on advocating in favor of services and treatments for people with all ranges of abilities. I've come across one or two people like you describe, but they're usually a lot younger than the other type and not that actively invested in their criticism.

Different circles, I suppose.