case: (Default)
Case ([personal profile] case) wrote in [community profile] fandomsecrets2014-12-13 03:38 pm

[ SECRET POST #2902 ]


⌈ Secret Post #2902 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.

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Notes:

Secrets Left to Post: 03 pages, 058 secrets from Secret Submission Post #415.
Secrets Not Posted: [ 0 - broken links ], [ 0 - not!secrets ], [ 0 - not!fandom ], [ 0 - too big ], [ 0 - repeat ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.

Advice about Birth Control

(Anonymous) 2014-12-13 11:49 pm (UTC)(link)
My niece has moderate autism and has started getting her period. My sister has talk to the gynecologist about different birth control options and has been looking around on the net. Was wondering if anyone had personal experience with various methods and could recommend?

The two biggest concerns are how often it needs to be taken (which is why we are shying away from pills) and if it can lessen or stop her period from happening (the blood terrifies her even after explanations).

We are leaning towards a IUD but neither of us have experience with one. Thoughts?

(frozen comment) Re: Advice about Birth Control

(Anonymous) 2014-12-13 11:53 pm (UTC)(link)
Hysterectomy would be a more socially responsible option.

(frozen comment) Re: Advice about Birth Control

(Anonymous) 2014-12-14 12:07 am (UTC)(link)
What.

(frozen comment) Re: Advice about Birth Control

(Anonymous) 2014-12-14 12:15 am (UTC)(link)
Some other parents have suggested tubal ligation but we are looking at alternative methods until she gets older.

(frozen comment) Re: Advice about Birth Control

(Anonymous) 2014-12-14 12:24 am (UTC)(link)
if you're one of those dicks who wants people with disabilities forcibly sterilized then just going for tubal litigation would be a lot easier. regardless, I think it's going a little far to even troll about it since she's just an adolescent girl. come on, man.

(frozen comment) Re: Advice about Birth Control

(Anonymous) 2014-12-14 12:36 am (UTC)(link)
da, but if this woman is autistic to the point where she can't understand that her menstruating isn't her bleeding to death, then...that might be the best option for her? It's not like a slightly autistic person who can take care of themselves/understands what sexual issues are. There are some autistic people who will never be able to understand it and it's a chore for them to deal with it.

(frozen comment) Re: Advice about Birth Control

(Anonymous) 2014-12-14 12:43 am (UTC)(link)
na

It's still pretty radical to do a hysterectomy on a pre-teen. I think it would probably be difficult to find a doctor who would do it. There are also health side effects to getting the procedure done; it's not like you just get your uterus taken out and everything is immediately normal

(frozen comment) Re: Advice about Birth Control

(Anonymous) 2014-12-14 12:50 am (UTC)(link)
Most surgeons will do anything as long as the check clears.

(frozen comment) Re: Advice about Birth Control

(Anonymous) 2014-12-14 12:55 am (UTC)(link)
ayrt

Yeeaaah, no. Most surgeons are too worried about potential lawsuits to do that. My friend can't get a doctor to perform a hysterectomy on her and she's 27 years old.

(frozen comment) Re: Advice about Birth Control

(Anonymous) - 2014-12-14 01:04 (UTC) - Expand

(frozen comment) Re: Advice about Birth Control

(Anonymous) - 2014-12-14 01:11 (UTC) - Expand

(frozen comment) Re: Advice about Birth Control

(Anonymous) 2014-12-14 01:04 am (UTC)(link)
da

Most surgeons consider a hysterectomy on such a young girl to be the absolute last resort, even with the consideration of disabilities. Generally, they try methods that have a far lesser possibility of complications unless medical problems such as aggressive cancer make it the best choice

(frozen comment) Re: Advice about Birth Control

(Anonymous) - 2014-12-14 01:11 (UTC) - Expand

(frozen comment) Re: Advice about Birth Control

[personal profile] kallanda_lee - 2014-12-14 01:26 (UTC) - Expand

(frozen comment) Re: Advice about Birth Control

(Anonymous) 2014-12-14 01:21 am (UTC)(link)
I'm not autistic and I thought I was bleeding to death. I started early, so no one had given me the Talk, and sex ed is bad here. So, yeah, no.
dethtoll: (Default)

(frozen comment) Re: Advice about Birth Control

[personal profile] dethtoll 2014-12-14 12:28 am (UTC)(link)
0/0

Re: Advice about Birth Control

(Anonymous) 2014-12-14 12:06 am (UTC)(link)
What does the niece herself think of it?

Re: Advice about Birth Control

(Anonymous) 2014-12-14 12:12 am (UTC)(link)
Nothing in particular. She doesn't really understand the whole period thing (even after the books, doctor, etc trying to explain it). Developmentally she is on par with a 9-10 year old (she is 12). Emotionally, probably a bit younger.
feotakahari: (Default)

Re: Advice about Birth Control

[personal profile] feotakahari 2014-12-14 12:19 am (UTC)(link)
This doesn't fit with criterion 1, but on criterion 2: http://en.wikipedia.org/wiki/Extended_cycle_combined_hormonal_contraceptive Some are marketed to completely stop ovulation (like levonorgestrel/ethinyl estradiol, AKA Amethyst.)

Re: Advice about Birth Control

(Anonymous) 2014-12-14 12:26 am (UTC)(link)
I remember that a named user (can't remember which one. maybe kaijin?) talked about the same thing a while back, so hopefully they see this post and can help you out (unless this is the same person going anon)
kaijinscendre: (Default)

Re: Advice about Birth Control

[personal profile] kaijinscendre 2014-12-14 12:41 am (UTC)(link)
Nah, that isn't me but I can give advice! Just let me message my sister and get all the details.
diet_poison: (Default)

Re: Advice about Birth Control

[personal profile] diet_poison 2014-12-14 02:39 am (UTC)(link)
oh, I remember that. Um. who was it

It wasn't Stella, was it? Maybe Chard?

There was a named user who had a niece (I think) who had a mental disability and had her period while over at that user's house.

depo?

(Anonymous) 2014-12-14 12:40 am (UTC)(link)
Injected/implanted hormones, maybe? I don't know if that's appropriate at twelve.

One thing I would say: Autistic does not mean incapable of learning. She's freaked out by blood now, but it's not good for your sister to try to totally protect her from it. She has to adapt.

Re: Advice about Birth Control

(Anonymous) 2014-12-14 12:44 am (UTC)(link)
I looked into getting an IUD and decided against it. The copper or inert ones don't reduce bleeding. The Mirena or Skyla ones do, but not for everyone. They're primarily for birth control, and lighter periods are just a side effect for some people. They also carry some risk of Pelvic Inflammatory Disease, so if your niece has issues communicating about pain, that could be pretty dangerous. I don't think I could handle the procedure anyway. I hate having anyone look at me or touch me down there, so it feels very invasive to me.

A friend of mine had Depo recently and bled for a month or so without breaks. So that's probably not your best option. Apparently all hormonal BC options that can stop or lighten periods can cause prolonged bleeding like that. Implants can stop periods entirely, or it can make you spot constantly.

I'd prefer to stick with the pill. My periods are much lighter. I have an alarm set on my phone so it's part of my routine. I think the best option is the one that's easiest for her to live with, if that makes sense.
kaijinscendre: (Default)

Re: Advice about Birth Control

[personal profile] kaijinscendre 2014-12-14 12:55 am (UTC)(link)
Per my sister: She recommends an IUD. They decided to give my niece the Mirena IUD. This was for several reasons, the first being that it can last up to five years. It also lightens periods and can sometimes stop it completely. My niece was given a sedative when it was inserted and she seemed to have no discomfort afterwards.

Shots can be considered but in our case were not reasonable. My niece does NOT do well with needles (as in screaming, hitting, punching, etc) and having to get one every three months seems more traumatic than necessary.

Regardless, be sure to watch and listen out for discomfort if you with an IUD and ask the doctor about scheduling follow up visits.

Also, teach sexual safety (where people should not touch you, etc). You can find books online for that.

http://www.amazon.com/Said-Guide-Keeping-Private-Parts/dp/1878076493/ref=pd_bxgy_b_text_y
http://www.amazon.com/Your-Belongs-Cornelia-Maude-Spelman/dp/0807594733/ref=pd_bxgy_b_text_z
http://www.amazon.com/Some-Secrets-Should-Never-Kept/dp/0987186019/ref=pd_sim_b_7?ie=UTF8&refRID=1PSKGW4MA83355FKS78E

Re: Advice about Birth Control

[personal profile] herpymcderp 2014-12-14 01:12 am (UTC)(link)
An IUD is generally a very low maintenance option, however there can be side effects such as inflammation and allergic reactions to the materials used in their construction at times. It's very rare that this happens, but it's something to keep in mind.

However... in general, an IUD will not cause cessation of menstruation. They simply are not designed to do so. If you're specifically looking for that, I would recommend a subcutaneous injection regimen that may be given bimonthly, usually at your GP or gynecologist's office*. You may wish to supplement this with pills if you are concerned about a period in between appointments.

*please note I'm not up to date on all birth control options, and that these treatments may not be approved in your country, state, or province

Re: Advice about Birth Control

(Anonymous) 2014-12-14 01:44 am (UTC)(link)
There's something I found when I was going through trying to find a way to help my PMDD. Going for this really depends on if it's believed your niece will one day be functional enough to want/have children. If not, maybe look into endometrial ablation.

Here's the WebMD page:
http://www.webmd.com/women/endometrial-ablation-16200

Progesterone-only pills worked for me, but there is that "take it every day" thing to worry about.

If I had the option, I'd get a hysterectomy (or just a oophorectomy), but even though I'm 36 and disabled.. nope, won't do it, even if my quality of life would vastly improve.

Re: Advice about Birth Control

(Anonymous) 2014-12-14 07:42 am (UTC)(link)
What about the implant? You know, the matchstick sized thing that is put in your arm and releases hormones. It lasts for six months or so? I have no experience with it, but I thought I'd throw it out there since no one else mentioned it. Might be an option to read up on.
were_lemur: (Default)

Re: Advice about Birth Control

[personal profile] were_lemur 2014-12-14 07:28 pm (UTC)(link)
I've had an IUD for a couple of years, now. I got the copper one, because hormones don't play well with my bipolar meds.

It hasn't stopped my periods, in fact I'm spotting more than I used to. So if blood is an issue, that won't be good. (I've always had irregular periods, though.)

Inserting it was uncomfortable, but bearable. For the next few days I had a fair amount of pain, worse than normal period cramps, but not as bad as a six-week miscarriage.

It's not completely maintenance-free, you're supposed to check the strings once a month, to make sure that the IUD is still in place. Still, it's a lot less of a premium on accuracy than having to take a pill at the same time every day.