fandomsecrets | [ SECRET POST #2932 ]

⌈ Secret Post #2932 ⌋

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I have fibromyalgia (which is a neuromuscular/neuroskeletal disease for anyone not in the know, basically constant/varying levels of pain and a sensitivity to touch etc). It took them over four years to diagnose me/realize what it was, and one time before my diagnoses I went home sick from work because the pain was so bad I could barely walk (I was doing what my co-worker affectionately calls the pickle-up-the-butt-shuffle XD).

Except at my work because it's a hospital you can't just 'go home sick' you have to visit the nurses in Occupational Health first so they can make a record of what's wrong, etc, and after explaining what was up to the nurse and how I was seeing specialists to figure out what was wrong, she looked at me and with a straight srs face said, "Oh. Well, is there a possibility it's psychological? What's going on in your life right now? Have you seen a psychiatrist?"

I was soooo taken aback and shocked by her words--that even if it HAD been psychosomatic it would have been none of her business, really, they're just there to evaluate whether we need to go home/go to the ER if we're like, vomiting/like the time my BP dropped to 80/50.

I wish now that I had said something, or gone over her head to tell someone what she had said, but on good days I'm not confrontational and at the time I was just too surprised by her saying such a thing. :/

I'm so sorry. That's shitty.

I have been tentatively diagnosed with fibro too (basically they don't know what else it could be) and it took some time to get it looked at because I also really do have severe psychiatric problems too.

D: I'm sorry, it's a sucky disease, not just for the pain and how limiting it can be in day to day living, but it's one of those mostly-invisible conditions where people seem content to judge and be all, "Oh, are you really sick?"

Have you been tested for Lupus (insert it's never Lupus joke here)? There's a lot of symptomatic crossover there, it's one of the things they tested me for too.

Good luck! :D

Yeah, there's so much of that attitude around that I'm constantly doubting myself over my fatigue. I start worrying that I'm really just lazy. It's gotten to the point where I'm actually relieved when the pain is worse than the fatigue (which is rare for me) because at least then it feels more like a legitimate problem that's harder to dismiss. But of course people find ways to dismiss the pain too. Laziness is just a big insecurity of mine so the pain doesn't bother me as much personally.

I'm pretty sure lupus is one of the things they tested me for the last time they took about a half dozen vials of blood.

Oh man, I know, right? Some days I'm just completely wiped, but I feel like 'oh everyone gets tired' so it's not something I should 'give in' to, even if my co-workers (the good ones anyway) remind me that if I'm tired/in pain to sit down and take a break, not just push through and hurt myself more because I feel guilty. :/ Which unfortunately tends to be a default state for me.

Holy fuck. There are two things never to ask someone who's clearly chronically ill: "Are you sure it's not in your head?" and "Are you contagious?"

I know right? And it didn't help that I had dropped about 50lbs rapidly from a med they tried me on (it basically made me not even want to look at food, even water made me want to vomit :/), so I was very haggard looking at that point in time too.

As a fellow fibro-sufferer, I completely sympathize. It's bad enough when friends, family and random acquaintances accuse you of being crazy and/or a hypochondriac, but it's doubly unpleasant when a health care provider does it. May spiders lay eggs in that nurse's sock drawer.

[ SECRET POST #2932 ]

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