fandomsecrets | [ SECRET POST #3041 ]

⌈ Secret Post #3041 ⌋

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This was sort of mentioned in the diagnosis thread, but since so many of you guys seem to know the ins and outs of healthcare settings, I was hoping to get some advice?

I requested a copy of my complete medical files from my neurology clinic, and upon reviewing them, found a completely unrelated EKG (heart teat) result said I had an arrhythmia that had an excellent chance of killing me. \o/ This was especially alarming, since this was captured when I was taken to the ER for collapsing. Even the physician who wrote the summary was basically like, "Uhm, wtf."

I called the neurology clinic to ask, "Dude, did you see this? Should I be worried?" But the med tech who was browsing my files said they didn't have that result, and asked me to forward it. (With hilariously incompetent results. It's like quintessential black comedy.)

This clinic is partnered with the ER I was admitted to. I got the EKG result as a request through the clinic. I am having a very hard time understanding why they can't access something I requested from their records.

Uhm, but otherwise. Does this seem like I'm coming off as a weirdo hypochondriac? Or am I being a proactive advocate of my health? Does my care team seem incredibly under informed, or is this standard?

I'm so frustrated I've shot past frustrated and into bleak humor.

If only hospital record systems could actually communicate with each other, it would save so many incredible headaches.

Now, a single EKG result isn't the end of the world, but it is definitely worth following up on. What I would do is make a physical copy of your record and give it to your primary care physician so that (s)he can order another test if need be. That way, if you need to make a copy for anyone else you still have the original.

ayrt

DDDD: Now I am SO CONFUSED because I actually called my GP to begin with and they were like, "Uhm, well ask the neuro clinic what they think, they probably would have said something if they thought it was serious."

The assumption being that the neuro clinic actually you know. Had the record. Which they didn't. So they don't actually know that I displayed that arrhythmia. So my GP fobbed me off back onto the neuro clinic to sort it out and WHY.

WHY WHY WHY IS EVERYTHING UP TO ME. Why do I as the uninformed patient have to try to coordinate the two health facilities, when the neuro clinic ALREADY HAS record of my ER visit, why can't they just call up the main hospital and ask for a record, since I am a patient in both facilities? And since they pooled their records recently???

I am done. I am done trying to do their fucking work. I would rather fucking die of a heart condition than do the work they are being paid to fucking do themselves. I quit.

I'll call the clinic back Monday and reiterate the problem, but they're going to be the fucking papermonkeys, not me.

(And while I recognize a single test isn't the end-all, it's kind of ominous that this particular arrhythmia was captured after I lost consciousness, had a seizure or my heart stopped, and was deemed urgent enough to be taken to an ER. This wasn't captured on a routine exam, it happened while I was having symptoms of long qt syndrome.)

Well there are all sorts of reasons to get that result on an EKG, is the thing. It could be indicative of unusual neural activity, it could be cardiac arrhythmia in the usual sense, or it could just be an improperly placed electrode screwing up the test result.

And yes, it is excessively frustrating when health care institutions can't seem to coordinate their health records, but it's a somewhat frequent occurrence. You can often just have the records faxed but people are people and are sometimes fallible.

Sometimes you do just have to push for someone to notice you, and that's just the reality of how the medical system works. I wish you the best of luck though, and I'm sorry you have to deal with this kind of shit. If it makes you feel any better, the medical community doesn't enjoy having to go chasing down patients' results and records any more than you enjoy having to forward them all over the place.

ayrt

Well, as long as we're all miserable in it together, there's no sense in me making their lives harder by not trying to help.

Although interesting about the neural activity weirding it up, that might explain things. Or just testing fallacy! Good to know.

At least now I know that I made the right decision in seemingly being the vaguely paranoid patient. Instead of, y'know. Just coming across as paranoid.

Get the neuro clinic to get the record from the hospital. That shouldn't be a problem as long as you signed the paperwork allowing them to do so.

I think I found something potentially lethal in my med records and no-one had warned me about it - I'd be pretty upsetr and wanting an explanation!

That said, medical practices are horrific at communicating with each other, ethics, confidentiality, human rights to having med shit be private. jumping hoops and all that. INCREDIBLY FRUSTRATING. There are some movements to get medical areas all onboard and share patient info but it's a tricky muddy area. So while they may have been able to request the DR's full notes and all, it may not be present on all systems.

Also yes, it is stupid.

ayrt

Apparently the reason why no one warned me about it was because no one could see it! ~~~mystery~~~

Although I supposed I could understand about the ethics/right thing if the clinic and the hospital with the ER that admitted me hadn't recently pooled patient filing pools in a single EMR.

But it sounds like, unsurprisingly, they fucked up the sharing system. Just like the attending doc at the ER when they released me after capturing long qt syndrom without further testing!

Motion to light ALL THE SYSTEM ON FIRE. A cleansing fire. Only the good practices will be left behind.

[ SECRET POST #3041 ]

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