case: (Default)
Case ([personal profile] case) wrote in [community profile] fandomsecrets2015-05-02 03:17 pm

[ SECRET POST #3041 ]


⌈ Secret Post #3041 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.

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Notes:

Secrets Left to Post: 04 pages, 085 secrets from Secret Submission Post #435.
Secrets Not Posted: [ 0 - broken links ], [ 1 2 - not!secrets ], [ 0 - not!fandom ], [ 0 - too big ], [ 0 - repeat ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.

Re: Healthcare team advice?

[personal profile] herpymcderp 2015-05-03 02:07 am (UTC)(link)
If only hospital record systems could actually communicate with each other, it would save so many incredible headaches.

Now, a single EKG result isn't the end of the world, but it is definitely worth following up on. What I would do is make a physical copy of your record and give it to your primary care physician so that (s)he can order another test if need be. That way, if you need to make a copy for anyone else you still have the original.

Re: Healthcare team advice?

(Anonymous) 2015-05-03 02:35 am (UTC)(link)
ayrt

DDDD: Now I am SO CONFUSED because I actually called my GP to begin with and they were like, "Uhm, well ask the neuro clinic what they think, they probably would have said something if they thought it was serious."

The assumption being that the neuro clinic actually you know. Had the record. Which they didn't. So they don't actually know that I displayed that arrhythmia. So my GP fobbed me off back onto the neuro clinic to sort it out and WHY.

WHY WHY WHY IS EVERYTHING UP TO ME. Why do I as the uninformed patient have to try to coordinate the two health facilities, when the neuro clinic ALREADY HAS record of my ER visit, why can't they just call up the main hospital and ask for a record, since I am a patient in both facilities? And since they pooled their records recently???

I am done. I am done trying to do their fucking work. I would rather fucking die of a heart condition than do the work they are being paid to fucking do themselves. I quit.

I'll call the clinic back Monday and reiterate the problem, but they're going to be the fucking papermonkeys, not me.

(And while I recognize a single test isn't the end-all, it's kind of ominous that this particular arrhythmia was captured after I lost consciousness, had a seizure or my heart stopped, and was deemed urgent enough to be taken to an ER. This wasn't captured on a routine exam, it happened while I was having symptoms of long qt syndrome.)

Re: Healthcare team advice?

[personal profile] herpymcderp 2015-05-03 02:44 am (UTC)(link)
Well there are all sorts of reasons to get that result on an EKG, is the thing. It could be indicative of unusual neural activity, it could be cardiac arrhythmia in the usual sense, or it could just be an improperly placed electrode screwing up the test result.

And yes, it is excessively frustrating when health care institutions can't seem to coordinate their health records, but it's a somewhat frequent occurrence. You can often just have the records faxed but people are people and are sometimes fallible.

Sometimes you do just have to push for someone to notice you, and that's just the reality of how the medical system works. I wish you the best of luck though, and I'm sorry you have to deal with this kind of shit. If it makes you feel any better, the medical community doesn't enjoy having to go chasing down patients' results and records any more than you enjoy having to forward them all over the place.

Re: Healthcare team advice?

(Anonymous) 2015-05-03 02:53 am (UTC)(link)
ayrt

Well, as long as we're all miserable in it together, there's no sense in me making their lives harder by not trying to help.

Although interesting about the neural activity weirding it up, that might explain things. Or just testing fallacy! Good to know.

At least now I know that I made the right decision in seemingly being the vaguely paranoid patient. Instead of, y'know. Just coming across as paranoid.

Re: Healthcare team advice?

(Anonymous) 2015-05-03 05:55 am (UTC)(link)
Get the neuro clinic to get the record from the hospital. That shouldn't be a problem as long as you signed the paperwork allowing them to do so.