fandomsecrets | [ SECRET POST #4605 ]

[ SECRET POST #4605 ]

⌈ Secret Post #4605 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.

01.

__________________________________________________

02.

[Vampire: The Masquerade - Bloodlines]

__________________________________________________

03.

[Avengers: Endgame]

__________________________________________________

04.

[The Parent Trap]

__________________________________________________

05.

__________________________________________________

06.

__________________________________________________

07.

Notes:

Secrets Left to Post: 01 pages, 07 secrets from Secret Submission Post #659.
Secrets Not Posted: [ 0 - broken links ], [ 0 - not!secrets ], [ 0 - not!fandom ], [ 0 - too big ], [ 0 - repeat ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.

Flat | Top-Level Comments Only

So apparently my mom can't get an IV even though she's honestly not getting enough nutrition and she cannot get on disability when she has freaking ALS. If someone with something like ALS can't get disability help than who the fuck can?

Nothing is fair and everything sucks.

Who did you talk to about her getting disability?

IDK exactly who it was. My mom just told me she couldnt get it back in Dec of last year.

Contact her local social services department. They can probably get her some one on one help. She might need a doctor referral.

I'll be sure to pass that along. Thanks

You can print the forms and checklists here. https://www.ssa.gov/applyfordisability/

It helps the fill them out before you go up there. Does she check all these?

-Are age 18 or older;
-Are not currently receiving benefits on your own Social Security record;
-Are unable to work because of a medical condition that is expected to last at least 12 months or result in death: and
-Have not been denied disability benefits in the last 60 days. If your application was recently denied for medical reasons, the Internet Appeal is a starting point to request a review of the medical determination we made.

This is just what I've heard, but in the US disability is hard to get without the help of a lawyer who specializes in that thing.

Eh, my father got it pretty easily without a lawyer. He just had help from the Social Security Office.

They always, ALWAYS reject the first time. You have to appeal. I know from experience with my wife. You might have to go to court, be ready to look into disability lawyers. They don't get paid unless you win and then only a percentage of the backpay.

I was told that you have to apply for disability more than once, and kind of keep pushing it. Which is ridiculous and stupid.

Definitely start talking to *everyone*. Not sure how old your mom is, but talk to the council on aging if she's older, talk to her doctor, talk to your state. If she's not getting nutrition and needs and IV, go to the ER and then when the people come to ask about payment (as they do), say she needs to apply for medicaid - they automatically apply for disability then, too, or if they don't in your state, you can do that at the same time (they'll send a person to help with forms - they sent them to my hospital room on day two after surgery, fun fun).

Good luck, and I 100 percent agree - fucking bullshite and totally unfair.

I got it the first time I applied but I interpret this to mean I'm obviously nuts.

I wonder if it's different from state to state, too; MO really sucks at giving people in need anything they actually need.

I know how much $$$ you get differs from state to state.

OH yes.

You're in america? If so:

Applying for benefits (ALS specific):
http://www.alsa.org/als-care/resources/publications-videos/factsheets/professionals-guide-govt-benefits.html

IV nutrition is not easy to get. I'm not sure how informed you are on the subject so sorry if I'm repeating things you already know, but it won't be given unless all the other options (hospital grade liquid or soft feed orally, then via tube or PEG) have failed. TPN is not just hooking someone up to an IV, it requires a PICC or central access and that line has to be flushed regularly to break up clots and bloods taken to monitor organ function because TPN is not easy on the body.

There are programs that fund nutritional services in the US but I'm not very familiar with them. Your best bet would be to speak with local hospitals and advocacy services about assessment and support.

Thank you for all your advice and help. My mom had minor surgery and is now getting the nutrients she needed. I apologize for being late to respond i was at the hospital all last night.

Oop forgot to sign in

Flat | Top-Level Comments Only

[ SECRET POST #4605 ]

Rant thread

Re: Rant thread

Re: Rant thread

Re: Rant thread

Re: Rant thread

Re: Rant thread

Re: Rant thread

Re: Rant thread

Re: Rant thread

Re: Rant thread

Re: Rant thread

Re: Rant thread

Re: Rant thread

Re: Rant thread

Re: Rant thread

UPDATE

Re: UPDATE