fandomsecrets | [ SECRET POST #2406 ]

⌈ Secret Post #2406 ⌋

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Notes:

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Flat | Top-Level Comments Only

For fuck's sake.

It's not about the cure It's....just read this: http://fandomsecrets.dreamwidth.org/852056.html?thread=674593880#cmt674593880

I have no problem with a cure. I have a problem with a group that calls it's self Autism Speaks and yet refuses to allow someone even mildly on the spectrum to have a place on the board. I have a problem with a group that by it's actions only seems to care that autistic people are "a problem" for others and not the autistic people themselves.

I would fully support a group ran by or at least INCLUDING autistic people that wanted to find a cure.

and I'm pretty sick of people interpreting me as "selfish" because I don't like a group that treats ALL autistic people as burdens(even the functional ones) and speaks OVER us "for our own good". I DO WANT A CURE FOR THOSE WHO NEED IT. But I'd like the group campaigning it to be one I can actually fucking trust.

I know some people have it worse than me and it can be frustrating. But Autism Speaks seems to push the view that "all autistics are a burden" as the ONLY appropriate view.

I spent 13 years of my life being bullied for everything from "weird" to "retard". Now that a group comes along adding "burden on society" to that list and now I'm supposed to give them my support or I'm selfish? Fuck that.

I said you're selfish for trying to tear down parents who said they'd want their burden to disappear. These aren't bad people-They're people who have an adult child for the rest of their lives, and it is hard. They should be allowed to vent, even if you don't like what they're saying. Can you imagine having to clean up an adult person's shit for the rest of your life? Having to spend all of your money on their care? No longer have any dreams, or any enjoyment in your life, because a baby in an adult's body is your eternal burden?

I think they have a right to wish this burden never existed or should disappear.

Also, let me tell you a story. I once saw two parents who looked absolutely exhausted, and their (what looked to be 30 something) autistic son, in a checkout lane. They weren't buying much, but he had this pack of brand-name juice with him. He put it on the belt and the father whispered to the cashier to not scan it. He threw a HUGE fit, and even though the father tried to tell him that they had the exact same juice at home, and didn't have money to really buy more at the moment, he kept screaming. Then he almost physically assaulted the poor girl cashiering, as he pushed her out of the way to get to her returns bin under the register threw it back onto the belt. It was horrifying and I felt so bad for these parents.

You only have an outside view. Yeah that sucks.

But you can't see how fucking insensitive you are silencing someone who's a part of that group that Autism Speaks preys on. The fact that you only refer to autistic people as a burden and add"oh and they have no life because of their disability as an afterthought" that tells me all you can care about is the people around them.

Try being in the body of an autistic person who struggles to communicate with people and get their feelings across and then have some group speaking for them and treating them only as a burden.

(also what bothered me, personally, is the fact that one woman said shit about killing her kid WHILE THAT KID WAS IN THE ROOM . You don't say that shit in earshot of your kid. At least leave the kid out of the room. Is verbal abuse okay suddenly because they're JUST autistic and since the parents lives are so hard?)

Yes , raising a person with disabilities is difficult.

What about people with physical disabilities, should we just let parents talk about what big burdens they are and spread campaigns that push that "Disabled people are burdens so they need to be fixed'?

Maybe the OP wouldn't be making a fuss about Autism Speaks if it actually acted like it gave a damn about their feelings and opinions. Maybe if it listened to the functional ones.

Also real nice of you to use your horror stories as emotional manipulation to try and make a person feel bad for having an opinion about people representing them.

Just...shut up. Please.

I'm not saying "no cure" or "don't complain about your situation if you have an autistic kid"

But making a PSA where the only point is parents talking about how awful it is to have an autistic kid. No message of hope, nothing positive just "have an autistic kid? WELL THAT SUCKS", When you're entire ad campaign is just telling people how HORRIBLE autistics are...you're not helping.

It's not that much to ask to want people to listen to the people with the disorder. Maybe idk spread awareness that it's a way the brain works. Coming up with solutions for the time being to work with them, and actually advocate thinking of the autistic as a person rather than "an overgrown drooling baby" or "a burden". Maybe come up with things like sponsoring a program to have more functional autistics working and trying to help them.

Most definitely have support groups for the parents and allow them to vent in that context.

I'm just saying Autism Speaks could do a lot more if it focused on actually helping everyone, rather than spending so much money telling people how bad the problem is for non functional autistics.

Their approach is the problem.

I don't have a problem with parents venting, but the venting shouldn't be used as something to show other people as if it's any kind of "education" about the situation.

Autism Speak's entire angle is "Autism sucks and Autistic people are burdens. Cure them so we don't have to deal with them" . There's nothing wrong with finding that offensive. Please don't attack a person who has more involvement than you in the issue for having an opinion.

Non-functioning autistics ARE burdens. There is no positive to caring for an adult baby for the rest of your life, and complaining that they didn't sugar coat the issue to help you feel good is petty on your part. You don't have to deal with a non-function adult, or change their diapers, or deal with constant tantrums. You don't have to skip going out, or living your life, because your adult baby needs constant care. Sugar-coating a serious problem is not a good solution, period.

Still the OP was stating her fucking opinion and feelings and SHE explained it quite thorughly. YOU continued to attack her for it.

The OP actually has compassion for the people WITH the disorder while all you care about is the people around them. You're sickening

[ SECRET POST #2406 ]

Re: Had a shocking moment of realization today

Re: Had a shocking moment of realization today

Re: Had a shocking moment of realization today

Wow...you are fucking dense

SA

Re: SA

DA