case: (Default)
Case ([personal profile] case) wrote in [community profile] fandomsecrets2021-09-19 04:00 pm

[ SECRET POST #5371 ]


⌈ Secret Post #5371 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.


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Notes:

Secrets Left to Post: 02 pages, 33 secrets from Secret Submission Post #769.
Secrets Not Posted: [ 0 - broken links ], [ 0 - not!secrets ], [ 0 - not!fandom ], [ 0 - too big ], [ 0 - repeat ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.

(Anonymous) 2021-09-19 08:36 pm (UTC)(link)
Can you explain this one a bit more to me? I don't get the chronic lyme disease part, and I'll try to google the own voices topic.

(Anonymous) 2021-09-19 09:21 pm (UTC)(link)
whether “chronic Lyme” is a real disease or a way for white ladies to sell life coaching on Instagram is very much an open question in both medical and wank-ical circles
sabotabby: (doom doom doom)

[personal profile] sabotabby 2021-09-19 09:30 pm (UTC)(link)
It's real. I know someone whose life was destroyed utterly by it. Basically, there was a period of denialism where I live about Lyme-carrying ticks, and while she was clearly infected, the doctors did not believe her in enough time to treat it properly. She now has seizures and went from being a very active person to completely housebound.

A year or two later, and they admitted that the ticks exist here, and there was a big public service campaign to alert people to the danger. But it's too late for my friend.

(Anonymous) 2021-09-20 04:47 am (UTC)(link)
That's not what the "chronic Lyme" people are talking about, though. Your friend had an actual, documented Lyme infection and the medical treatment was fucked up. The "chronic Lyme" thing is people who have never had a Lyme infection, didn't get treated because they weren't infected, and then develop chronic fatigue symptoms but consider themselves too special to get chronic fatigue.
sabotabby: (doom doom doom)

[personal profile] sabotabby 2021-09-20 10:31 am (UTC)(link)
Ah, valid. I assumed that they were talking about the kind of thing that happened to my friend, which is horrifying.

(Anonymous) 2021-09-19 09:59 pm (UTC)(link)
It seems pretty clear that chronic diseases with fatigue and pain symptoms are a real and poorly understood thing, even though it's pretty unlikely that Lyme has anything to do with it

(Anonymous) 2021-09-19 10:26 pm (UTC)(link)
Isn't it even possible that people are picking up some other previously unknown tick-borne disease?

I mean, there's one that causes basically a red meat allergy; I wouldn't be surprised if ticks carried something that's not Lyme but can kickstart autoimmune problems.

I don't know anyone who's had Lyme, chronic or otherwise, but I think there's yet another tick disease that's the big problem where I am; there are eight listed for my state, including Lyme.

(Anonymous) 2021-09-19 11:01 pm (UTC)(link)
Yeah, this. Chronic Lyme has been pretty thoroughly debunked as a thing - it's a bacterial infection, and like any other bacterial infection, if you take the proper antibiotics, they will wipe it out.

Now, it's entirely possible and even likely that someone might have lingering symptoms that were caused by the Lyme disease and what it did to their body while they had it (the same way that viruses can cause post-viral syndromes even when the virus itself is out of your body), but it's patently false that it somehow continues living in your body for months or even years once it's been treated with the proper antibiotics.

OP

(Anonymous) 2021-09-20 02:08 am (UTC)(link)
The MC in this book explicitly says that she no longer has Lyme, just the long-term damage it left behind.