[ SECRET POST #2525 ]

[case]

⌈ Secret Post #2525 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.

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Notes:

Secrets Left to Post: 03 pages, 063 secrets from Secret Submission Post #361.
Secrets Not Posted: [ 0 - broken links ], [ 0 - not!secrets ], [ 0 - not!fandom ], [ 0 - too big ], [ 0 - repeat ].
Current Secret Submissions Post: here.
Suggestions, comments, and concerns should go here.

Comments

Seizure anon

[(Anonymous)]

Hey guys, it's seizure anon again. I figured it would be good of me to check in with you guys and let you know how I'm doing.

The good news is that my MRI and EEG came back clean.

The bad news is I'm pretty sure I'm still having seizures. :/ I'm... honestly not sure if I even want to keep going on with this and aggressively pursue a diagnosis.

I realize that while a clean EEG doesn't mean I don't have a seizure disorder, I just have zero energy left to get this diagnosed. I haven't thrown a tonic clonic or anything, just a few complex partial seizures, so it's not hugely life disrupting.

I am just so fucking done you guys.

Re: Seizure anon

[(Anonymous)]

I'm really sorry to hear about this. I understand you must be so frustrated. I'm sorry, I personally don't have any good advice, except for to make sure you take care of yourself so you can stay as healthy as possible. I really hope that things go better for you soon.

Re: Seizure anon

[cakemage]

I completely understand being frustrated with the slow, costly and physically/emotionally/mentally draining diagnosis process. It took many years, multiple doctors and a lot of persistence to even begin to be taken seriously about most of my various medical complaints, and in some cases it took several years after that to get the actual diagnosis. Hell, I'm still being tossed from specialist to specialist to figure out what's causing the frequent dizzy spells I've been having for over two years. But despite the aggravation and the multitude of expensive,exhausting and often painful tests, I've chosen to continue pursuing a diagnosis, because if you don't know what the problem is, you can't expect solve it. Maybe it would help to think of it like that?

In any case, please continue to keep us updated. We're rooting for you.

Re: Seizure anon

[(Anonymous)]

That sucks, anon. If you have any upcoming doctor's appointments scheduled, maybe you can use that opportunity to explain that this process is wearing you out and you aren't sure you want to press onward. Some doctors can get very carried away with trying to fix the problem and aren't always very good at dealing with problems that can't be easily fixed and the toll that takes on the patients. You could try to initiate a frank talk about what advantages there would be in, as you said, aggressively pursuing a diagnosis right now, like, have you eliminated enough possibilities that there are only a few options left and you're bound to get an answer soon? Or have you merely eliminated the simplest possibilities and there are many remaining options that may be complex and hard to diagnose and an answer could be a long time coming? I know nothing about seizures or your situation, but if the seizures don't seem that dangerous and the cure is starting to get worse than the disease, it might be helpful to find a middle ground where the process of diagnosing you is still ongoing but at a slower rate and you don't have to go in for tests quite so often.

Re: Seizure anon

[leikomgwtfbbq]

I was just thinking about you earlier and wondering if you were okay! All the hugs, seizure-anon <3