fandomsecrets | [ SECRET POST #5470 ]

[ SECRET POST #5470 ]

⌈ Secret Post #5470 ⌋

Warning: Some secrets are NOT worksafe and may contain SPOILERS.

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That my GI tract starts working properly again. Whether that's by actually finding (and being able to travel to/afford) a doctor who won't dismiss my issues because "women always want to be skinny so what's the problem?", or just miraculous healing for no obvious reason. I just want to be able to eat and drink like a normal person again and be properly nourished and hydrated. :/

Crohns?

I looked into it, and it doesn't quite fit. My best guess (and I have to guess, since no doctor I've seen in the last ten years will do more than an upper GI endoscopy and blood tests which show nothing wrong) is SIBO that has gone untreated (and unidentified) for literally 35 years and has been wreaking enough havoc to wreck the functions of other related organs.

I really wonder if I would've been able to put this behind me if the last doctor I'd seen had just been okay with TRYING the relevant antibiotics rather than going "I've never heard of SIBO so I don't think it exists and therefore rather than prescribing non-habit-forming and non-dangerous medication, I'm going to do nothing."

I am really sorry. I really hope you get both of those things: healing and a doctor who listens.

<3 Thanks. I have a few leads, but in other states, and during this pandemic (since this has decimated my immune system), really not safe to use public restrooms and hotels on the way there. (And one person I know was hospitalized for something else, vaccinated, still died of covid contracted there. I am avoiding medical facilities if at all possible.)

Eww to that doctor.

I hope you find one who's not an ass.

Me too, thanks.

One reason I find Star Trek so fantastic (in the "unbelievable" sense) is that the doctors are basically universally awesome. Not been my experience IRL. :P

I had covid in january of this year (actually diagnosed a year ago to the day honestly) and it messed up first my liver and gave me hepatitis that thankfully went away and then destroyed my stomach. I had a gastric emptying test done twice and the final (good) doctor (after two very very bad doctors and losing 84 pounds and being unable to eat much of anything all year) diagnosed me with gastroparesis. I have a mostly liquid diet now and medications for my stomach bleeding and spasming that was happening (still happens but less painfully now) and I can eat some solid foods (but not a whole lot successfully/without consequence) and I generally favor mashed potatoes and soup. Ensures have been a life changer. I don't know if any of this is of any benefit for you but it could give you something that might have a grain you can chase to benefit you? If anything, know that stomach issues can be dealt with without destroying you - I've put back on 10 pounds since going on this diet!

Oh yeah, this is stuff I can relate to. I've been dealing with this since I was 9 (with, somehow, about a 8-10 year reprieve in my 20s-30s that came back the first time I had a stomach bug since I was a kid). Gastroparesis seems to be a part of it now, though it wasn't until a few years ago - that's part of what I mean above about uncontrolled SIBO (or the fact that I wasn't able to eat basically anything without pain for years) possibly messing up everything else.

My diet for the last several years is basically Ensure mixed with instant coffee and peppermint (because one thing I figured out on my own is that my stomach doesn't produce enough acid to digest stuff, so I have to either agitate it or give it some additional acid) and spoonfuls of peanut butter/nutella (mixed with ginger or tabasco for the same reason) because they're high-calorie even in small amounts. It's helped me to not look like a skeleton anymore, at least. Pickles are about the only solid food I can semi-reliably eat anymore, presumably because of the high salt/vinegar content, but they're not calorie-dense so mostly I have to stick to nut butter if I want more than 400 calories a day. :P

I'm just... so incredibly tired of not being able to swallow more than a couple bites of anything at once, and then hours of pain even from just that, and not being able to move around much or talk or be in a moving vehicle for those hours because of the unrelenting reflux. (Spicy/high-acid stuff gives me LESS pain and sometimes actually gets rid of the reflux, but I still can't swallow anything, even water, without hours of misery.) I could survive indefinitely like this, I'm not dangerously underweight anymore, but since I can't do anything I used to enjoy except SOMETIMES concentrate enough to write fic... I don't really see any reason to keep on going. (I keep telling people I'll try to finish the epic stuff I've been sitting on before I go though, hahah.)

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